diagKNOWsis was started by Trisha Torry after she was diagnosed with a rare form of lymphoma. It turned out that she never had lymphoma and she found this out through her, "research, networking, and the partnership (she) established with (her) second-opinion oncologist."
Now she is about.com's expert on patient empowerment. What a cool title! There is a discussion forum associated with this of course. I was drawn into an interesting thread started by Dr. L about the state of healthcare, health insurance, and the affodability of being a dr. these days. It's an anonymous forum so whether you are a physician, patient or work at an insurance company, you can add your 2 cents.
BTW - I found out about this on CNN/health. Click on the Torrey tab for Trish's article.
Showing posts with label support_groups. Show all posts
Showing posts with label support_groups. Show all posts
Monday, July 7, 2008
Wednesday, June 25, 2008
The Wellness Community
I just perused another great site. This one creates a community for cancer patients and their caregivers. It's called the Wellness Community. I've never heard of them before. This is the scoop from their website: "Founded in 1982, The Wellness Community is an international non-profit organization dedicated to providing free support, education and hope to people with cancer and their loved ones." They have both on-line and physical support groups with professional staff.
They have public discussion boards - free and easy to join - that are very similar to most social networking discussion boards. They also have on-line support groups that meet via phone and chat for 90 minutes/week. Trained facilitators lead these groups of 8-10 people. Other great features include a relaxation meditation that you can download, cooking and nutrition information, and a spanish version of the site.
Navigation on the site is fairly intuitive. The only warning I have is that the social media and on-line support "join" button is only available from the home page. I'm sure they will re-design the site so that if you look at the "about" page you will be able to jump back to the on-line community and join but for now, don't panic, just click on the logo in the upper left corner of the page. That takes you home where you can sign in.
They have public discussion boards - free and easy to join - that are very similar to most social networking discussion boards. They also have on-line support groups that meet via phone and chat for 90 minutes/week. Trained facilitators lead these groups of 8-10 people. Other great features include a relaxation meditation that you can download, cooking and nutrition information, and a spanish version of the site.
Navigation on the site is fairly intuitive. The only warning I have is that the social media and on-line support "join" button is only available from the home page. I'm sure they will re-design the site so that if you look at the "about" page you will be able to jump back to the on-line community and join but for now, don't panic, just click on the logo in the upper left corner of the page. That takes you home where you can sign in.
Thursday, May 22, 2008
DailyStrength
An outstanding idea with the execution to match - DailyStrength.org is a social networking site designed to support people with any health issue you can think of. It's free and anonymous.
Sign up is simple and the site is well designed. They have support groups already started for just about any disease or condition you can think of from allergies to women's health. If you don't find what you are looking for, however, you have two options. You can suggest a new support group or you can start a member group and invite others to it.
I just signed up today. I'll post more after I've used it a couple times.
Sign up is simple and the site is well designed. They have support groups already started for just about any disease or condition you can think of from allergies to women's health. If you don't find what you are looking for, however, you have two options. You can suggest a new support group or you can start a member group and invite others to it.
I just signed up today. I'll post more after I've used it a couple times.
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